Wednesday, June 16, 2010

Sisters

Emma loves to watch Cloey. We are thankful that Emma has such a wonderful big sister to look up to.
The girls cuddling in their pjs before bed.
Our beautiful girls after church.
Cloey is such a proud big sister!!!

The time has come now that Emma has left the NICU and been home for over a month. We have started a blog to celebrate how wonderful both our girls are and the accomplishments that they will make. Please continue to follow the new blog and watch Emma grow and progress and watch Cloey continue to be an amazing big sister. Again God Bless All of You and all your prayer and support. Again PLEASE continue to follow us at www.4mazingos.blogspot.com
P.S. Emma is getting baptised in August (we believe it will be August 8th) and we are planning a cookout celebration for all who have followed her blog and supported and prayed for her after her baptism. More details will come once it gets closer.

Tuesday, June 15, 2010

Funny

I found this on a shirt today and thought it was both cute and funny. I am thinking Emma might just need this one.
Top 10 Reasons to start out in the NICU
10.) One on One nursing makes me feel special
9.) A little extra attention never hurt anyone
8.) The regular nursery is for WIMPS
7.) Being wireless is overrated
6.) TPN is like fine wine for babies
5.) Not just ANYONE gets to go to the NICU
4.) My medical file is BIGGER than yours
3.) I know how to spend money - have you seen MY insurance bills?
2.) I'll only get better with age
1.) A drama fueled entrance into the world starts in the NICU!!!

Intervention Services

The Virginia Department of Health sent us a letter in the mail the other day. The letter talked about Emma's diagnosis of CDH and they sent a fact sheet with the letter. They also sent us a brochure that was for "Families of Infants and Toddlers with Special Health Care Needs". In that brochure it talked about Early Intervention Services. We have known that CDH and the simple fact that Emma was on a ventilator for so long could cause her to have some developmental delays. Once we got the brochure we decided to go ahead and do a self-referral for Emma. This way if she does needs services, we can get them started right away. The nurse is coming to the house for her evaluation on Monday afternoon and we will see if she qualifies for services. If she does qualify then we will write up a plan for Emma with goals that are family focused and someone will also come into our home to offer services. This has been a bit of a surreal experience since I am usually on the other side of the process. Our goal is to always get our baby girl the services and help that she needs to live a healthy and productive life. We did find it interesting from the CDH fact sheet that approximately 25 babies are born with CDH in the state of Virginia - it is hard to believe Emma falls in this tiny group. Please pray that her evaluation goes well on Monday and that the nurse is able to determine the help and services that Emma needs if they are needed.

A Bedtime Story

The other night Cloey read Emma a bedtime story and it was just precious. She is such a wonderful big sister and loves Emma so much!

video

Sunday, June 13, 2010

Busy Transitioning

We haven't blogged lately because we are in the process of transitioning. I finished up work on Friday and summer vacation officially began. Yeah, I only worked one week before summer vacation started. Jason has started up his summer classes. He has two classes this summer and they both require a lot of reading and writing. Cloey is now here for the summer. We got her last night and her summer with us has begun. So needless to say there have been a lot of changes going on. We got a couple cute pictures of the girls this morning after church. I will try and upload a video and some pictures tomorrow. The number one priority tomorrow is to get the house cleaned up and organized. Well the number one priority is actually always to enjoy time with Cloey and Emma. Good Night and God Bless All of You!!!

Thursday, June 10, 2010

Tuesday, June 8, 2010

Sorry

Sorry there haven't been many posts, pictures, or videos the last few days. I had to go back to work on Monday so I am busy all day and when I get home I like to spend time with Emma since I have been gone all day. Then I am super tired. I cried all the way to work Monday and only part of the way on Tuesday. I think it was only part of the way Tuesday because I knew Jason was bringing her down for the afternoon. Today was the last day with students and the next 2 and 1/2 days are teacher workdays. I will try and get a video up tomorrow since I shouldn't be as tired.