Tuesday, April 27, 2010

Just a Quick Update

Emma had a great day feeding wise.  Last night for her nurse she took 52 of the 63 ml that she needs to take.  She took 40 and 30 a couple other times during the night.  Today we had speech again with Lawson and she informed Emma that it was boot camp time now.  We spent her feeding switching between different bottles and nipples to try and figure out which one she like the best.  By the end of the feeding she had taken about 43 ml.  Then Daddy and I were determined to help her get the light bulb to go off.  With both of us working with her we were able to get her to take 57 ml.  It actually brought us both to tears that she only had 6 ml that had to be put into the pump.  The also made the decision to add a human milk fortifier to the breast milk to help increase the calories.  Right now Emma is falling in the 3rd percentile and they should actually increase the volume she needs to eat, but since that is already a challenge they went with the milk fortifier.
Emma also came off of her methadone today.  She should of gotten a dose at 5:00 pm but the decided to just stop giving it to her.  We are hoping that this change also helps with her eating.  Jason and I plan on asking if we can feed her on her own hunger cues tomorrow rather than their strict every 3 hour schedule.  She was actually hungry at 6pm tonight and had to wait to 8pm to eat so she tired herself out by the 8pm scheduled feeding and only took 40 ml.
Tonight Emma has her car seat challenge.  This is normally only done with preemies, but since Emma only has half a lung on her left side they need to see how she will do in a car seat.  She will sit in her car seat for 2 hours and the nurse will make notes on how she responds every 15 minutes.  They are also lowering her bassinet back to the flat position since she has not spit up in quite a few days to see if she can now lay flat.  We are sad to see her nurse Lynn leave after tonight.  We have had her every night since Emma made the transition to E Pod.  She has been very helpful with Jason and I and offered us lots of great advice.  
Keep up those prayers!!! God Bless All of You!!!