Sunday, April 4, 2010

We attended Easter services in the hospital chapel. The minister prayed for Emma and her upcoming surgery. It was very nice and uplifting. Thankfully Emma has had another uneventful day. They continue to balance her sedation, oxygen and blood pressure needs. Emma gained 4 ounces of weight today. Unfortunately, she shouldn't be gaining like that yet. Fortunately she doesn't look puffy and it doesn't seem to be bothering her. When the doctor made rounds he said he didn't know where she was hiding it. He said maybe it was in her tush and she was laying there thinking "Does this diaper make my butt look big?" He interjects just the right amount of humor to help us deal with this stressful time. The care from all the staff continues to be wonderful. While searching on line my mom found a website Breath of Hope. It was started by a woman who had a child with congenital diaphragmatic hernia (CDH). The baby was actually born at University of Virginia also. She started a non profit organization for CDH. She received her non profit status on March 31, 2007. March 31st is now National Congenital Diaphragmatic Hernia Awareness Day and Emma's birthday. Many states have proclamations designating this day. The founder actually comes to the neonatal intensive care unit on that day and passes out turquoise ribbons (Cloey's birthstone) and cupcakes. Our nurse had forgotten about that because she didn't work on Emma's birthday. We will miss our nurse Karen who has taken care of Emma for the last 3 days. But, Ashley her nurse the first day should be in to take care of her tomorrow. Karen will be back Wednesday and Thursday.